Today is a day that I will always remember because it was the day my life changed forever. “You have MS, Nicole” were words that made me scared and relieved at the same time. After not being to operate my legs, numbness in my hands and feet, weakness in my limbs, I felt relief that I wasn’t crazy. Can you imagine having to tell yourself to pick up your foot as you walk? Or not realizing that you are holding a cup because you couldn’t feel it in your hand? I knew I had to get tough and battle this diagnosis. I never knew how strong I was until being strong was the only option. I have my cheerful days and I Also have days of being scared. Scared that if this disease progresses having the ability to walk or needing assistance like some of my other fellow MS Warriors. I feel like maybe that’s my purpose in life, to inspire others who may think they are alone with any health diagnosis and encourage them to keep going. My faith and relationship with the Lord grew deeper. My family and SOME of my friends bonds grew closer. I’ve met some amazing people on this journey and look forward to a CURE!!
Tag: multiple sclerosis
Today started as a typical Monday. The weather in LI is light rain and windy. I was in a good mood and work was going ok. After 2 pm, that changed!
I started to feel dizzy and my legs began to feel wobbly. The feeling of Jell-O came over me and tried my best to hold it together. It wasn’t until I got home, where I broke down and later fell.
You know what’s so interesting about being diagnosed with MS? Its regardless of how long I have been battling this debilitating disease, the same “original” 101 symptoms still occur. A year prior to diagnosis, my legs felt like jello all the time. It felt like gravity was pulling me down but yet I “looked” ok.
Currently, I plan to diffuse some essential oils and apply some topically to my legs. I use doTerra DDR Prime and Francencinse for my legs; and peppermint oil for my headaches. Take deep breaths and relax. Snuggles from the hubby and son helps too 😉❤️.
Thanks for reading friends
Nicole Cherise ❤️
In the past 8 years, I’ve battle symptoms of Multiple Sclerosis. I’m an open book about this, therefore it’s no secret. I like to spread awareness so that others who are afraid, can Know they are not alone. Not only does MS have physical challenges but it also makes us schedule our lives differently.
I often cry to myself because I would make plans with people that I love and have to cancel because I don’t feel well. It’s hard to believe because on the outside, I “appear” to have it together. Yes, my fro is in place, my clothes look neat, I made it to work (somehow), I smile in selfies (hey, I like to take pics 💁🏾), I upload pics of my family but the truth is, it takes a lot of me to do those things.
I want my family, friends and church family to know that I truly love you all. I appreciate your words of kindness, prayers and guidance. I miss the “old” Nik all the time. I loved being able to just get up and go and attend most events that people hosted. Now, that I’m a wife and mom, they are my immediate family. I try to be there for them during the moments I do have some additional energy while working full time. That doesn’t mean that I love any of you less or that I don’t want be a better family member, better friend, or church sister. God forbid if things went left and the disease progress agressively (which could happen), it’s going to be my husband and son who are obligated to step in as Caregivers. Doesn’t that mean that other family and friends can’t help? No, but you all have families as well to attend to. I’m a selfless person especially about that. Don’t stop plans, or life because of little ole me. Heck, I even feel that way for husband and son too.
I also can’t forget the grieving that I’m still trying to process. At times, I’m just sad and want to be Still. I want to seek comfort from God’s promises and rest. While at rest, I’m mentally, emotionally and physically calming down from stress. Losing my father and Goddaughter is a type pain that I never experienced and trust me, I’m doing my best.
Through it all, I believe things will get better, I will get better. My relationships will grow better. I love you all and I ask that you don’t give up on me. I don’t need sympathy, just patience and understanding. Thank you 🙏🏾
Hug someone that you know with MS! Us MS Warriors appreciate it!
Nicole Cherise 🎗
I was so excited when I got my issue of Neurology Now magazine! It features Jamie-Lynn Sigler, an actress who went public about her Multiple Sclerosis diagnosis.
I entitled this post,”MS Sister” because when it comes to MS Warriors, I look at them as sisters and brothers. If you haven’t seen or read the article, please do!
I’m so happy for Jamie-Lynn. I know opening up about MS wasn’t easy (especially as an actress) but it’s good for those who are scared to know that they are not alone. We are in this battle together. We are Mighty Strong!!
Nicole Cherise ❤
As I’m typing this, I’m having difficulties walking. This is a video that I shared on Facebook in regards to what it like to have Multiple Sclerosis(MS).
As I type, I’m experiencing leg pain after a day of feeling great and being on the move. That is the unpredictable aspect of dealing with MS symptoms. However, I’m still happy and won’t let this “hiccup” keep me down.
I shared the link above because it makes me happy to see celebrities open up about either their own battles with illness or express the experiences of their loved ones.
Check it out
Illness, one thing we don’t want to discuss, see or have to deal with. It’s rough to go through an illness and it’s even harder when someone you love is sick. It’s hard for a caregiver and loved ones because they would give anything to take the pain away or get angry that there is Nothing they can do. But there is something you can do.
If they have a rare disease, educate yourself. Even if you have heard of it, gain knowledge of the disease so that you can try to understand what’s happening to his or her body.
Be supportive to your loved one. They will feel isolated, angry, sad and more. If they need help, do so. Many people (like myself) have pride and won’t ask for help but reassure him or her that you will come over and help even if it’s to do the dishes. You would be surprised how happy your generosity can help.
Be strong but realize they are strong too. You should be sensitive to them and their needs. Many times someone battling a disease will push their limits but if he or she says that they can do something believe them and let them get their rest. As a person who fights against Multiple Sclerosis, I do push myself and “appear” fine when in reality, I’m not. The strength of my husband and parents are what keeps me going. My family and friends are wonderful as well. They all understand that when I need rest or I’m not feeling well, I can’t always jump and be on the go like I used to.
I pray they find a cure to the diseases that our loved ones are battling and for our loved ones who have passed away. Until then, cherish your loved ones and just let them remember how much they mean to you because you truly mean the most to them, trust me 🙂
Thanks for reading
Thanks for visiting and sharing my blog.
Today is what I like to call in my blog “motivational Monday’s”. This is also apart of the scheduled blog entries that I discussed in a previous post. Today, I want to discuss “Hope”.
What is Hope? I feel hope is the anticipation of a positive outcome for the future.
This hits close to home for me especially on today. If you have been following my blog, you may know that I was diagnosed with Multiple Sclerosis (MS) 5 years ago. With this debilitating disease, I find myself in a battle of emotions constantly. On one hand, I remain strong and keep in mind that things could be worse. On the other hand, I’m frustrated with the symptoms and the potential ending result of the disease. Hope is what keeps me grounded.
I have Hope that scientists will find a cure, I have hope that no more damage will happen to my central nervous system, I have hope that I may feel normal again. Besides my wonderful support system, having hope, makes me not want to give up even when at times I want to.
What is hope for you? It may be career, relationship goals, self help. Whatever it may be, try to think positive and not give up. It’s ok to prepare yourself for the not so great events but it’s good to always have hope for a better outcome.
Take care all!