Last night, I had the honor of attending the National MS Society Long Island Chapter event. It recognized the top fundraisers for the Walk MS 2019. Team Nicole Cherise earned a little over $1700 and we were placed at number 64!!! I’m so thankful to those who have walked with me and supported our team for such a cause that is near and dear to me. Next year will be TEN years diagnosed with MS and I will continue to spread awareness and fight for a cure! God bless you all and let’s get to work for 2020!!!
On today, 9 years ago, I was diagnosed with Multiple Sclerosis. After receiving the news I felt relief. I was experiencing symptoms for a year before getting this news and I was just happy that I wasn’t crazy. The symptoms at that time was numb and weakness on my left side of my left shoulder, arm, fingers, leg, feet and toes. I would fall, and needed assistance to walk. My hands would fall asleep a lot and I battled nerve pain. It all made sense once the neurologist showed me the images of my Brain that at the time had 9 lesions on it. This was all the confirmation I needed.
I’ve learned a lot about myself since the diagnosis. I realized that I am strong, my Faith was tested, I can be too critical of myself, it’s ok to say “No” and I learned the importance of support.
The Long Island MS Walk is May 18th and I’m super excited this year. I will have my family, friends and some friends from work to walk along with me and other MS Warriors.
Thank you to my family and friends for loving me and all of the challenges that may come with me. Thank you to all who have prayed for me. Thank you to those who reach out to see how I’m feeling. Thank you to those who donated to our Walk MS team “Nicole Cherise”. Thank you to those who have reached out to me for support during their own MS diagnosis. Lastly, thank you to my New MS Warrior friends, we are in this journey together and I love the fact that I can chat with others who can Relate.
Where is the Love for the MS Warriors? Right here!!!
As I’ve written before, March is MS Awareness Month and this week is MS Awareness week. Even with my wobbly legs, I am continuing to Push Through!
I made a choice to show up strong for my loved ones, go to work even when it hurts, and I’ve modified outfits so that I’m comfortable as an effort to beat the challenges of MS. There are some days that I’m not able to give 100% but trust and believe giving 0% is NOT an option .
To my fellow Warriors and Caregivers, I’m proud of you for Not giving up. The Pain and Depression is real and can effect us but I believe in You! I also believe that we will be Victorious against this horrible disease. Therefore, I will continue to send spiritual and positive energy your way! Thank you all for being supportive to me as well!
That’s something I continue to tell myself during challenging times. It’s not easy battling a difficult disease like MS, but I can’t give in to it. I know many that read my blog, are battling other autoimmune diseases, mental health issues, or spiritual brokenness. I also, know that Caregivers have a challenging task when it comes to watching someone they love suffer. WE ARE NOT ALONE! Together, we can lift one another up because Support goes a long way.
This past week, I had my Tysabri treatment and the days after were rough. I had difficulty walking, it was a task to get dressed, I fell twice and I cried because of the pain and weakness in my legs. Even during this time of despair, I promised myself that I wouldn’t give up and I would PUSH through it all at my own pace. I urge you all to do the same. I went to the gym on Sunday and did my best with what I had for that day (I do the spoon theory in my head lol). The amount of support that was given to me was overwhelming and it truly melted my heart. People re-posted my video and tagged me as Inspiration for them to exercise.
Please continue friends. Don’t give up on yourself or the process. Below is the video that I posted and keep in mind that days prior, I was not able to walk far alone. God is good. Thanks for reading!!!
March is MS Awareness Month! Here is some info on Multiple Sclerosis. The collage include the definition and the different stages that many of US MSWarriors are diagnosed with. Please feel free to ask any questions! Thanks for reading!
I hope you all are doing well. I’m doing ok! Over the weekend, the family and I had a nice family trip. The Kalahari indoor water park is a MUST go! I felt like I was youthful again, as I splashed around and was drenched by the water falls lol. Returning back home, was good up until last night.
My legs are on Fire! It’s uncomfortable to walk and I feel exhausted. How could it be? After having a great weekend, playing in the water? Oh the water! For MS patients, water helps to keep the body temperatures cool. No wonder, I felt my best at the resort. Today is treatment day. Usually after a few days from the Tysabri being administered, I “perk” up a bit. I’m looking forward to that because I was spoiled this weekend lol.
Nonetheless, your girl is staying strong and I will keep Pushing. I pray that you can do the same. Regardless of the challenges, don’t give up on yourself and keep going!
Before signing off, shout out to my fellow MS Warrior Selma Blair at the Oscar’s!! Rocking her cane and slurred speech, she looked Stunning!
MS symptoms can try to take over my spirit. Being a wife, a mother, a scholar, and a hard worker can be overwhelming. I’m sure many of you have felt the same. I’m here to tell you that victory is ours.
This picture was taken after crying my little heart out but a crooked smile was able to surface. I continued to think about my “why?” and I was able to wooo saaa and calm down. I pray that you all can find reason to smile after your storms. I’m here for you if you need me ♥️
As a child, I never quite understood how older people could tell it was going to rain or when they said “It’s cold, I can feel it in my bones”. It’s funny how life happens because now I say similar things!
Since being diagnosed with MS, my body lets me know if the humidity is high, if it will rain, and if the temperature is very cold. I experience leg weakness during this time, numbness in toes and sometimes very painful nerve pain. As I type this post, my left big toe is curing numb and I’m having nerve pain in both legs. It really sucks.
However, the show has to still go on. On days like this, I still have to be wifey, mommy and assistant supervisor at work. I pray to God for strength, as tears may flow down my cheeks and slowly get it together. I know there are others who experience this and more. There are other warriors with physical ailments and mental issues that can be thrown off due to the weather.
When it rains, it pours. I wish, I could cut back some of the storms, but unfortunately that can’t happen and that’s Life. How we choose to manage IS up to us.
We can let the weather take over us and our spirit or we can dance in the rain and view the rainbow that follows.